Celebrating 41 Years


be iNFormed for Teachers

Use the NF1 Information for Teachers (NF Midwest be iNFormed Series) article to provide to your child’s teacher and school. This article is…

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2012 NF Midwest Symposium

Want to learn more about neurofibromatosis? Looking to meet others with NF? Hoping for a cure? Join Neurofibromatosis Midwest; noted…

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be iNFormed about Optic Gliomas

By Dr. Robert Listernick (NF Midwest be iNFormed Series) Optic pathway gliomas are benign (low grade) pilocytic tumors. They may…

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Schwannomatosis International Database

A consortium of medical institutions is collecting limited information on schwannomatosis patients. This includes their symptoms, their management and medication,…

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be iNFormed about Learning in NF1

James Tonsgard MD and Scott Hunter PhD (NF Midwest be iNFormed Series) Neurofibromatosis Midwest is excited to start a new…

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