Celebrating 35 Years

2013 Neurofibromatosis Educational Symposium

22 Years of Bringing People Together to Learn From Experts and Each Other

NF Midwest is holding its annual educational symposium on Saturday, October 12th at the Northern Illinois extension building in Hoffman Estates, IL.  Going on its 22nd year, this symposium is one of the oldest and most attended neurofibromatosis learning opportunities for the lay community in the US.

Includes Breakfast, Lunch, Snack and Friendship

NF Midwest’s symposium focuses on practical advice and information and strives not just to educate, but to bring people together to meet and learn and get support from one another. To this end, socializing and eating are equally important to learning. That’s why the day will include a continental breakfast, a sit down lunch and a great afternoon snack and visiting time.

The Day is Filled with iNFo!

We’ve put together a great agenda that is sure to have something for everyone. We will start out the day with a quick NF Overview (because we all need to know this stuff forwards and backwards). We will then hear from a very special NF survivor and “NF muscle man“, DeJuan Evans who is “training 2 live”, followed by information on family planning and reproductive options. After that we will break out into NF1 and NF2 groups to learn more about those specific types of NF.

NF1 Topics

NF1 topics will be on socialization issues in NF1, optic gliomas, plexiform tumors, the Neurofibromatosis Theraputic Acceleration Program (NTAP), and a collection of “lessons learned” from NF parents and individuals affected by NF1.

NF2 Topics

NF2 topics will include an update on drug discovery efforts for NF2, indentification and development of therapeutic targets, improving quality of life, and also a sharing session on lessons learned.

Kids Groups

For the kids there will be two kids groups. One for kids ages 5 to 12 and the other for kids 13 to 18. Their day mainly involves hanging out, having fun and meeting new and old friends, but our muscle man, DeJuan will also visit to talk about fitness (if you give permission for your child to attend – it is not required).


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