Registration, continental breakfast and socializing begin at 8:00 am.
The program will start at 8:45 am with an Intro to Neurofibromatosis.
Below are the tentative speakers and topics. Other topics and/or
speakers will most likely be added. Please, check back for updates.
This list is not in schedule order and speakers may be subject to change
or cancellation.
The following breakout sessions run concurrently.
Breakout #1/NF-1 Focus
This will run concurrently with the NF2 breakout and will be optional to those with an NF2 interest.
Breakout #2/NF-2 Focus
Andrew Fishman, MD, Northwestern Memorial Hospital, Chicago
Teen Session (for children ages 12 to 18)
Kids Speaking Out—Sandra Cushner-Weinstein MSW, Social Worker, Children’s National Medical
Center, Washington, D.C. This optional session will give NF children and their siblings a chance to
talk about NF, living well or anything they’d like. It is for the children only and will run
approximately 1 hour. No parents will be allowed. The permission form on the registration sheet
must be filled out and signed in order for a child to participate. If we don’t have a permission form
they will attend the younger children’s group while the Kids Speaking Out session is going on. If
you’d like your younger child to attend please call us for permission.
The program will start at 8:45 am with an Intro to Neurofibromatosis.
Below are the tentative speakers and topics. Other topics and/or
speakers will most likely be added. Please, check back for updates.
This list is not in schedule order and speakers may be subject to change
or cancellation.
- Introduction to Neurofibromatosis
- Overview of Public Benefits
The following breakout sessions run concurrently.
Breakout #1/NF-1 Focus
- Additional Presentation to be announced
- Recent Advances in NF1 Research
- Removal of Fibromas through Electro-Desiccation
- Promoting Resiliency
This will run concurrently with the NF2 breakout and will be optional to those with an NF2 interest.
Breakout #2/NF-2 Focus
- Massachussets General Hospital NF2 Research Update
- NF2 Clinical Perspectives and Patient Care Delivery
Andrew Fishman, MD, Northwestern Memorial Hospital, Chicago
- Open Discussion: What are the components of a patient friendly, efficient NF2
clinic?
Teen Session (for children ages 12 to 18)
Kids Speaking Out—Sandra Cushner-Weinstein MSW, Social Worker, Children’s National Medical
Center, Washington, D.C. This optional session will give NF children and their siblings a chance to
talk about NF, living well or anything they’d like. It is for the children only and will run
approximately 1 hour. No parents will be allowed. The permission form on the registration sheet
must be filled out and signed in order for a child to participate. If we don’t have a permission form
they will attend the younger children’s group while the Kids Speaking Out session is going on. If
you’d like your younger child to attend please call us for permission.
| be informed! NF Midwest 2010 Symposium Saturday, October 16, 2010 Northern Illinois University Building Hoffman Estates, IL View Brochure |
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Learn about the latest progress in NF research, current treatment options, and practical advice for
living with NF.
living with NF.