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Neurofibromatosis Midwest

DEDICATED TO SUPPORT, EDUCATION AND HOPE!

Resources/Articles

Condition Related Resources

For articles, resources and news on a specific type of neurofibromatosis

Neurofibromatosis Type 1 Page

Neurofibromatosis Type 2 Page

Schwannomatosis Page

Understanding Neurofibromatosis 3rd Edition PDF

Faces of NF PDF

 

Health Care Coverage

For resources related to getting health care coverage – including insurance issues, medicare, medicaid, disability, social security, pre-existing condition insurance, etc. Page

 

Learning Related Resources

For resources, articles, video etc. on learning and school issues. Page

 

Children Related Resources

For helpful links, articles, etc relating to children issues with NF, chronic illness, coping and more. Page

 

Women Issues and Family Planning

Reproductive Options for People with NF1, NF2 and Schwannomatosis by Amanda Bergner, MS CGC, Johns Hopkins University PDF

Do hormonal contraceptives stimulate growth of neurofibromas? A survey on 59 NF1 patients by Marge Lammert, Victor-Felix Mautner and Lan Kluwe* PDF

 

Genetics

Genetic Testing Through a Lifetime:  A Webinar Recording from NF Mid-Atlantic Video

 

More Resources

Medline Plus

MedlinePlus is the National Institutes of Health’s Web site for patients and their families and friends. Produced by the National Library of Medicine, it brings you information about diseases, conditions, and wellness issues in language you can understand. MedlinePlus offers reliable, up-to-date health information, anytime, anywhere, for free. Use MedlinePlus to learn about the latest treatments, look up information on a drug or supplement, find out the meanings of words, or view medical videos or illustrations. www.nlm.nih.gov/medlineplus

Other NF Organizations Page