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Neurofibromatosis Midwest

DEDICATED TO SUPPORT, EDUCATION AND HOPE!

NF2 Resources

General

Possible Complications of NF2 Shown on BodySheet PDF

 

Treatment

Consensus Recommendations for Current Treatments and Accelerating Clinical Trials for Patients With Neurofibromatosis Type 2 from The American Journal of Medical Genetics (Sep 2011) PDF

Neurofibromatosis Type 2 Imaging Website

 

Hearing

Cochlear Implants in NF2 – NF2 Crew interview of  Derald E. Brackmann, M.D. of the House Ear Institute in Los Angeles (2009) PDF

Auditory Brain Implant (ABI) and Cochlear Implant (CI) Webinar Recording – Presented by the NF Network with Dr. William Slattery, House Ear Institute, California

 

Eyes

Ocular Manifestations of Neurofibromatosis: Relief for Dry Eyes – NF Midwest Symposium Transcript Presented by Louise A. Sclafani, OD, FAAO PDF

 

Transcripts

Facial Reanimation from NF Network webinar (Feb 2012) PDF

Research Update by Ashok R. Asthagiri, M.D., HHS/NIH/NINDS NF Midwest Symposium  (2011) PDF

Patient Care Delivery at Northwestern  – Dr. Andrew Fishman at NF Midwest symposium (Oct. 2011) PDF

NF2 Research at Massachusetts General Hospital - Vijaya Ramesh, Ph.D Midwest Symposium Transcript (2010) PDF

 

Websites

NF2 Crew – A Neurofibromatosis Type 2 Support Community - nf2crew.org

Advocure, Inc. – Advancing Research for NF Type 2 - advocurenf2.org

Acoustic Neuroma Associationanausa.org

Association for Late Deafened Adults, Inc. –  alda.org