NF1 Resources
Overall Care
Information for Medical Professionals PDF
Neurofibromatosis Type 1 Revisited from Pediatrics, Official Journal of the American Academy of Pediatrics 2009 PDF
Clinical Manifestations and Management of Neurofibomatosis Type 1 by James Tonsgard, MD 2006 PDF
Primary Care for Patients with Neurofibromatosis Type 1 by Leigh Hart, RN, CCRN, PhD, in Nurse Practitioner 2005 PDF
Possible Complications of NF1 Shown on BodySheet PDF
Vascular Disease in Neurofibromatosis-1 Page
Tumors
Optic Gliomas - Article by Dr. Robert Listernick 2012 Page
Insurance Coverage of Fibroma Removal PDF
Learning Related Resources
For resources, articles, video etc. on learning and school issues. Page
Children Related Resources
For helpful links, articles, etc. relating to children issues with NF, chronic illness, coping and more. Page
Women Issues and Family Planning
Reproductive Options for People with NF1, NF2 and Schwannomatosis by Amanda Bergner, MS CGC, Johns Hopkins University PDF
Women with neurofibromatosis 1 are at a moderately increased risk of developing breast cancer and should be considered for early screening by S Sharif, A Moran, S M Huson, R Iddenden, A Shenton, E Howard, D G R Evans PDF
Seizures/Epilepsy
Epilepsy Foundation of America epilepsyfoundation.org
Recorded Webinars
NF1 General Information for Families with Dr. Maria Acosta provided by NF Mid-Atlantic Video
Los fundamentos de la Neurofibromatosis 1 – Dra. Maria T. Acosta.wmv provided by NF Mid-Atlantic Video
10 Things Everyone Should Know About Their NF1 with Dr. Robert Listernick provided by the NF Network
