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Neurofibromatosis Midwest



Step Forward with your Time & Talents to Fight NF!

NF Midwest and the neurofibromatosis cause needs you!

Take Your Pick…

We Have a Volunteer Opportunity to Match Your Interests and Skills…

  • Looking for a fun team-building event for your co-workers? Form teams for Great Steps or sponsor an office fundraiser that brings everyone into the action!
  • Do you like to raise money for good causes? Offer to recruit corporate sponsors and auction prizes for one of our events.
  • Do you like the adrenaline rush of pulling everything together? Consider pitching in to help organize a local chapter event.

Everything you do, big or small, will move the neurofibromatosis cause forward.

Join the NF Midwest Board if you:

Can attend regular meetings and raise funds for research, clinics and educational programs.

Want to be in the center and know everything you can about NF.

Want to help set the direction of NF Midwest and drive its execution.

When does the NF Midwest Board meet?

The board generally meets the third Monday of the month at 5:00 pm at the St. Charles office. This may be changed based on the needs of the majority of the board. We can accommodate people through video or phone conferencing if they are unable to attend in person.

Join a Local Chapter Group if you:

Want to help structure programs and activities in the area to help us fulfill our mission.

Want to meet and work with local families and individuals who also share an interest in NF.

For additional information or to volunteer, contact us at 630-945-3562 or