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Neurofibromatosis Midwest


Featured Story-Just the Bear Facts Ma’am

Posted on November 13th, 2012 by jperkins

Madelynn, happy despite her disabilities.

The Lake Zurich (IL) High School newspaper, Bear Facts recently did a feature story on neurofibromatosis. The author, Lexi Miranda did a great job of telling the story of what the Boyas family has been through since finding out that their 5 year old daughter, Madelynn has NF.  This story gives the students at LZHS a peek into what NF is, through the eyes of Emily Boyas, a reading specialist at the school. What a great way to raise awareness! Thanks to Emily for sharing this story with us.   Boyas family high school paper article

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