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Neurofibromatosis Midwest

DEDICATED TO SUPPORT, EDUCATION AND HOPE!

A Letter From a Parent

Posted on November 27th, 2012 by NF Midwest

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Dear Friend of NF Midwest,

Today I had the chance to get together with a friend that I haven’t seen in quite some time, and we managed to talk for three hours about our boys, ages 9 and 12, both with NF1. On my way home, I thought about how blessed I have been and the blessing that has been NF Midwest.

My family’s lives have been tremendously impacted by the NF Midwest family.  That’s truly what they have become to us-family.  Earlier this spring, we had the opportunity to go to the NF Midwest office in St. Charles, IL.  I’m not quite sure what I expected, but there were only three people running this organization that serves NF families in six states! Little did I realize that this visit would lead to the biggest adventure in all of my son Silas’ 9 years, as Si got to go to Camp New Friends in Virginia. Not a day goes by since he came home that Camp New Friends isn’t mentioned. Even more remarkable than that is that those campers’ experiences were made possible by people who just want to make a difference. Making positive differences in the lives of people with NF is ultimately what NF Midwest represents to me. Of course, their contributions to research are extraordinary, and our family has seen first-hand how wonderful camp can be, but I am just as moved when I see a simple message from the staff at NF Midwest offering thoughts and support for someone who is scared and anxious about a test result.

Silas and Joey on their way to camp.

The uncertainties of NF can be too much for people to bear and can leave them feeling powerless (yes, I am speaking from personal experience). Our participation in NF Midwest has helped us take some of that power back, and has given us hope. I am asking for your financial support to help keep that momentum going that NF Midwest has created, to keep those smiles on those campers’ faces, and to keep making those differences. It’s all done from the little office in St. Charles, but not everyone realizes that it takes money just to keep that office running day to day. It takes money to make copies, buy stamps and keep the lights on.

Don’t forget about NF Midwest this year. They don’t forget about you. Please include NF Midwest on your holiday gift list. Will you donate $10, $20 or even $50 so that they can continue the NF Midwest mission?

Sincerely,

Andrea M.


 

Thank you for thinking of us this season. Your gift helps us continue to be there for you. Please let us know if your donation is in honor of a loved one or if you would like to have it credited toward a Great Steps team.

NF Midwest is a registered 501(c)3 organization.  All donations are tax deductible to the extent of the law.

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