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A community event is a fundraising or awareness activity by a group or
individual outside of NF Midwest in which we have little or no staff
involvement or responsibility. Donations and awareness from community
events are important in helping further our mission to fund research and
provide programs of support and education to those affected by
neurofibromatosis.
From hosting a dinner party, pub crawl, trivia night, skate-a-thon, to
donating proceeds from product sales, there are countless ways to raise
funds and awareness for NF Midwest and there are endless possibilities. We
are excited to hear what you have in mind. If you need help just give us a
call and we can explore your ideas together.
We have developed a set of guidelines, not meant to intimidate, but to
maintain our reputation and the value of our name. Please understand we
are trying to lower the risk and liabilities to our organization. If you have
any questions regarding these guidelines please call the office and we’ll be
happy to walk you through.
The collection of fees, entries, payments and all contributions are the
responsibility of the event organizer or designated contact unless other
arrangements have been made with us. Unless the event organizer is
registered as a 501(c)(3), donations made payable to the event organizer
do not qualify as a charitable, tax deductible contribution. Donations made
payable directly to NF Midwest is tax deductible to the full extent of the law.
Please review the guidelines found here and submit the community event
agreement. This fact sheet is a guide only. Contact NF Midwest if you have
any questions.
Good Luck!
individual outside of NF Midwest in which we have little or no staff
involvement or responsibility. Donations and awareness from community
events are important in helping further our mission to fund research and
provide programs of support and education to those affected by
neurofibromatosis.
From hosting a dinner party, pub crawl, trivia night, skate-a-thon, to
donating proceeds from product sales, there are countless ways to raise
funds and awareness for NF Midwest and there are endless possibilities. We
are excited to hear what you have in mind. If you need help just give us a
call and we can explore your ideas together.
We have developed a set of guidelines, not meant to intimidate, but to
maintain our reputation and the value of our name. Please understand we
are trying to lower the risk and liabilities to our organization. If you have
any questions regarding these guidelines please call the office and we’ll be
happy to walk you through.
The collection of fees, entries, payments and all contributions are the
responsibility of the event organizer or designated contact unless other
arrangements have been made with us. Unless the event organizer is
registered as a 501(c)(3), donations made payable to the event organizer
do not qualify as a charitable, tax deductible contribution. Donations made
payable directly to NF Midwest is tax deductible to the full extent of the law.
Please review the guidelines found here and submit the community event
agreement. This fact sheet is a guide only. Contact NF Midwest if you have
any questions.
Good Luck!
| Be the change! Hold a Community Event for Neurofibromatosis! |
NF Midwest depends on many dedicated and generous people who
voluntarily work to raise funds and awareness for neurofibromatosis through
various community events. Funds from these events help to continue to
support research to find a cure and improve medical care for NF patients.
Just as importantly, these events educate the public about NF and reach
others with neurofibromatosis.
voluntarily work to raise funds and awareness for neurofibromatosis through
various community events. Funds from these events help to continue to
support research to find a cure and improve medical care for NF patients.
Just as importantly, these events educate the public about NF and reach
others with neurofibromatosis.
| CARE and CURE is "U"! |