Featured Story-Just the Bear Facts Ma’am

Madelynn, happy despite her disabilities.

The Lake Zurich (IL) High School newspaper, Bear Facts recently did a feature story on neurofibromatosis. The author, Lexi Miranda did a great job of telling the story of what the Boyas family has been through since finding out that their 5 year old daughter, Madelynn has NF.  This story gives the students at LZHS a peek Read the Rest…

Honor “The Mom” and Celebrate NF Midwest’s 30th Anniversary!

What’s considered to be a long time at one job? At what point is your dedication respected and honored? What is your reward?

Our organization has existed now for 30 years.

Try to imagine the beginning.

A family is told that their child has a disorder with a strange sounding name that they’ve never heard of – Read the Rest…