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Neurofibromatosis Midwest

DEDICATED TO SUPPORT, EDUCATION AND HOPE!

Archive for the “Research Updates” Category

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Adaptive Behavior in Young Children with Neurofibromatosis 1

NF Midwest has been funding cognitive studies of young children with NF for the last two years. These studies have been lead by Bonnie Klein-Tasman at the University of Wisconsin-Milwaukee. This past fall we saw the results of these studies with the publications of two journal articles by Dr. Klein-Tasman and Read the Rest…

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NF2 Symposium Transcript from J. Kissil, PhD

At NF Midwest’s annual family symposium held on October 12, 2013, Dr. Joseph Kissil from the Scripps Institute in Florida spoke about current research on the identification and development of therapeutic targets in neurofibromatosis type 2. As part of our continuing effort to keep the neurofibromatosis community iNFormed we have published the Read the Rest…

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Neurofibromatosis Network Science Column

The Neurofibromatosis Network, NF Midwest’s national affiliate, has just unveiled their new science column called The Network Edge which will provide a summary of recent highlights from NF research and clinical trials.  The NF Network, through advocacy on Capitol Hill and direct funding of research, plays a central role in progress toward a cure.

Every Read the Rest…