Follow us on Twitter Visit us on Facebook! Check out our pins on Pinterest

Neurofibromatosis Midwest

DEDICATED TO SUPPORT, EDUCATION AND HOPE!

Archive for the “Research” Category

university of wisconsin

University of Wisconsin Research Collaboration

We are excited and proud to announce our collaboration with the University of Wisconsin-Madison, Biotechnology Center. The UW Biotechnology Center and NF Midwest are currently in the process of establishing new NF research at the University of Wisconsin. This partnership marks a strong step forward in bringing new research techniques and NF awareness to Read the Rest…

participate in research-01

Help Research: Stay in Touch With Your NF Clinic

It is VERY important to visit your “NF clinic” regularly, but if  can’t and it has been a while, PLEASE try to provide that clinic an update of your condition, especially if there have been changes in your health. Having an accurate database of how individuals with NF are affected is important for knowledge Read the Rest…

bonnie_klein_tasman

Adaptive Behavior in Young Children with Neurofibromatosis 1

NF Midwest has been funding cognitive studies of young children with NF for the last two years. These studies have been lead by Bonnie Klein-Tasman at the University of Wisconsin-Milwaukee. This past fall we saw the results of these studies with the publications of two journal articles by Dr. Klein-Tasman and Read the Rest…

be informed for posts-01

NF2 Symposium Transcript from J. Kissil, PhD

At NF Midwest’s annual family symposium held on October 12, 2013, Dr. Joseph Kissil from the Scripps Institute in Florida spoke about current research on the identification and development of therapeutic targets in neurofibromatosis type 2. As part of our continuing effort to keep the neurofibromatosis community iNFormed we have published the Read the Rest…

participate in research-01

Neurofibromatosis (type1) study for ages 15 to 19

The Genetics Division at the Faculty of Medicine and Health Sciences from Université de Sherbrooke in Québec has opened a new research study for young adults between the ages of 15 and 19.

The survey is called  NF and Me: What I Need to Know and What I Have to Say About My Health, Privacy and Read the Rest…

participate in research-01

NF1 and Scoliosis Genetic Study

Genetic Evaluation for the Scoliosis Gene(s) in Patients with Neurofibromatosis 1 and Scoliosis

Participants are needed for  a study entitled: Genetic Evaluation for the Scoliosis Gene(s) in Patients with Neurofibromatosis 1 and Scoliosis. The study is being conducted by Dr. David W. Polly, Jr. of the University of Minnesota-Department of Orthopaedic Surgery and Dr. Christopher Read the Rest…

participate in research-01

NF1 and Breast Cancer Study

Call for Study Participants

The Department of Medical Genetics at Henry Ford Hospital in Detroit, MI is conducting a study to evaluate the genetic and molecular characteristics of breast cancer in NF1 patients. We are looking to recruit men or women with NF1 who also have a history of breast cancer. Potential participants would be Read the Rest…