Great News! $25 Million Secured for Neurofibromatosis Research in FY 2024
There’s fantastic news for the fight against neurofibromatosis (NF) and schwannomatosis (SWN)! The recent spending bill allocates $25 million specifically…
Read MoreCheck out past blogs and news!
There’s fantastic news for the fight against neurofibromatosis (NF) and schwannomatosis (SWN)! The recent spending bill allocates $25 million specifically…
Read MoreLegends of the NF Cause: How Do We Honor Gordon Cummings and Gert Ginsberg? Losing Gordon and Gert In the…
Read MoreThank You to Our “Boots on the Hill” We extend our heartfelt gratitude to Laura Haslam, Christina, Kassandra Thomas, Adam,…
Read MoreHere is your sign to start the new year working on your goal of continuing post high school education. The…
Read MoreNF Midwest recognizes the unique challenges that accompany living with neurofibromatosis (NF), impacting both individuals with the condition and their…
Read MoreNF Midwest extends heartfelt gratitude to the Frano Family for their remarkable generosity and creativity. Inspired by their commitment, the…
Read MoreLooking for a friendly face and a listening ear? Do you have questions about neurofibromatosis, but aren’t sure where to…
Read MoreLooking for a friendly face and a listening ear? Do you have questions about neurofibromatosis, but aren’t sure where to…
Read MoreThis Years Focus Will Be On Research and Learning From Each Other! A day of education for families and individuals…
Read MoreWe’re thrilled to announce the launch of our virtual open office hours! This is your chance to connect with me…
Read MoreA 7 day, 6 night residential summer camp for children and teens living with Neurofibromatosis Type 1, Type 2 and…
Read MoreFebruary 29th is Rare Disease Day. In the United States alone, according to the National Organization for Rare Diseases (NORD),…
Read MoreHave you ever noticed faint, light brown patches on your skin? These “café au lait” spots are quite common, but…
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