See what it’s all about. Watch video of the 2012 Great Steps 4NF walk in Naperville, IL. Started in 2001, this is the largest walk for neurofibromatosis in the US and possibly the world. Not too physical, the focus is on fun and support. It’s a rally for NF!
Join the NF community and participate in a Great Steps for Neurofibromatosis walk.
The Great Steps 4NF Walks include the largest walk for NF in the country in Naperville, IL.
Bring co-workers, friends and family.
Fun and friendship is the theme!
Our loved ones with NF are the center!
Raise awareness and funds by starting Read the Rest…
Genetic Evaluation for the Scoliosis Gene(s) in Patients with Neurofibromatosis 1 and Scoliosis
Participants are needed for a study entitled: Genetic Evaluation for the Scoliosis Gene(s) in Patients with Neurofibromatosis 1 and Scoliosis. The study is being conducted by Dr. David W. Polly, Jr. of the University of Minnesota-Department of Orthopaedic Surgery and Dr. Christopher Read the Rest…
The Department of Medical Genetics at Henry Ford Hospital in Detroit, MI is conducting a study to evaluate the genetic and molecular characteristics of breast cancer in NF1 patients. We are looking to recruit men or women with NF1 who also have a history of breast cancer. Potential participants would be Read the Rest…
A neurofibromatosis type 2 researcher is looking for people who have been diagnosed with NF2 and have hearing loss to participate in a brief survey about communication.
The online survey will take approximately 10 minutes to complete. Participation in this survey is voluntary. It is not necessary to answer every question and you may discontinue Read the Rest…
NF Midwest has 9 coveted spots left for the Naperville Marathon or Half Marathon. Registration opens again on March 25 at 9:00 am…but only for charity fundraising runners.
If you want to help families affected by NF while running in the Inaugural Naperville Marathon, give NF Midwest a call!
We have your ticket to this cool race Read the Rest…
Chapters are forming throughout the Midwest to DoIt4NF.
On Monday, January 28th the Evansville chapter held a fun productive meeting and made plans to pass out water and share information about neurofibromatosis at the Southern Indiana Classic Marathon. They also discussed the possibility of an NF Family Event and a fundraiser for NF.
The Central Read the Rest…
It’s brand new year and hopefully you’re keeping some of your resolutions.
We all know how that there is not enough neurofibromatosis and schwannomatosis awareness. We know that cause is underfunded and deserves much more. What difference will you make this year?
One resolution not to break is to DoIt4NF in 2013! The neurofibromatosis cause needs Read the Rest…
Fall/Winter 2012 Newsletter is now available online. You’ll find lots of iNFormation on neurofibromatosis and the happenings at Neurofibromatosis Midwest. Plus there are links to extra photos, articles and other content! If you aren’t already on our email list and would like to receive notice of our next newsletter as well as other updates, Read the Rest…
On February 4th and 5th, NF Midwest executive director Diana Haberkamp and others will be the visiting congressional offices of your Senators and Representatives in Washington, DC to ask for support for NF research through the National Institutes of Health (NIH) and the Department of Defense’s (DOD) Congressionally Directed Medical Research Program (CDMRP). For more Read the Rest…
