Check out a recording of the Update on Schwannomatosis webinar that was sponsored by the Neurofibromatosis Network on Dec. 19, 2012. The presenter was Dr. Plotkin, director of the Neurofibromatosis Clinic within the department of Neurology at Massachusetts General Hospital.
Learn more about schwannomatosis.
Watch a recording of the neurofibromatosis 2 webinar about Auditory Brain Implant (ABI) and Cochlear Implant (CI) advancements. Held on November 7, 2012, this webinar was presented and recorded by the NF Network with Dr. William H. Slattery who heads the Department of Clinical Studies at the House Ear Institute in California.
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It’s much better to be there, but If you missed our annual symposium in October the transcripts of a few of the presentations will be made available.
The first to be made available is a presentation from the Neurofibromatosis-2 breakout called Ocular Manifestations of Neurofibromatosis: Relief for Dry Eyes which was given by Dr. Louise A. Read the Rest…
Thanks to Dr. Cynthia Hingtgen, formerly of the Indianapolis University NF Clinic, for another be iNFormed article. This one is about possible vascular issues in neurofibromatosis type 1. This article may be a little scary. It is important to realize that most of these complications are very rare and that research is Read the Rest…
It can be difficult for general care physicians and even specialists to stay informed about every disorder they may encounter. This includes the neurofibromatoses. To help, we now have a special sheet called NF1 Information for Medical Professionals.
This informative sheet is designed to provide basic facts about neurofibromatosis type 1 and complications that Read the Rest…
Check out another article in our be iNFormed series.
This one covers Comprehensive Neuropsychological Evaluations for Children with NF1. Thank you to Jill Isenberg, Ph.D., ABPP from the St. Louis Children’s Hospital and Washington University NF Center, for generously donating her time and experience to write this article for the NF community.
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School has started and we have a new be iNFormed article that might help your child with neurofibromatosis type 1 who is attending school. This one is specifically meant as an aid for teachers and was generously provided to us for duplication by the British Columbia Neurofibromatosis Foundation (BCNF).
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Want to learn more about neurofibromatosis? Looking to meet others with NF? Hoping for a cure? Join Neurofibromatosis Midwest; noted NF doctors and researchers; and families and individuals with an interest in neurofibromatosis at the Annual Neurofibromatosis Midwest Symposium on Saturday, October 13, 2012 in Hoffman Estates, IL (Chicago).
Neurofibromatosis Midwest has been holding this symposium to Read the Rest…
Reproductive Options for People with NF1, NF2 and Schwannomatosis written especially for the NF community by Amanda Bergner, MS CGC, Johns Hopkins University is the newest article in our be iNFormed series.
This article is written to provide basic information for people with neurofibromatosis type 1, neurofibromatosis type 2 and schwannomatosis about genetic testing during a pregnancy and Read the Rest…
Neurofibromatosis Midwest is pleased to release another article as part of our be iNFormed education initiative.
This article covers Optic Gliomas in Neurofibromatosis and was was graciously written for us by Dr. Robert Listernick from the NF Clinic at Lurie Children’s Hospital of Chicago (formerly Children’s Memorial).
Check out the article here and be sure to check Read the Rest…
