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Neurofibromatosis Midwest


Archive for the “Great Steps” Category

NF Midwest T-Shirt

Join Our Monthly Giving Circle – Get a FREE T-Shirt

Join our Monthly Giving Circle  and for a limited time you may receive a FREE NF Midwest Neurofibromatosis Fighter T-Shirt!

A monthly donation is a painless, effortless way to support neurofibromatosis and NF Midwest. Your monthly generosity gives NF Midwest a reliable income stream so that we can focus more of our resources on Read the Rest…

Valley Park Chuck a Luck2

Wilburns Doin’ It 4NF!

So far this year we’ve had all sorts of wonderful people and groups coming forward and Doin’ It 4NF! There are so many that we can’t possibly highlight them all, though we will certainly try!

This past weekend the Wilburn family and their friends had a “Chuck-A-Luck” booth at Valley Days in Valley Park, MO. Read the Rest…

NF Awareness month 2015 2-01-01

Spread the Word in May!

May is Neurofibromatosis (NF) Awareness Month and Sunday, May 17th is NF Awareness Day.

While the NF cause needs you in every season, every month and every day, May provides a great reason to really spread the word NEUROFIBROMATOSIS.

If you’re comfortable and able, this is a great time raise awareness by sharing your NF story Read the Rest…


Great Steps 4NF 5K Run Results

Thanks to all that ran in the 1st annual Great Steps 4NF 5K run. You all did great!  Here are the results:

Name                                                 Bib#                                     Time

Amundson, Ryan                             15                                         26:27

Backes, Joseph                           Read the Rest…

Tim's Gang at our Inaugural Great Steps 4NF walk in Naperville, IL.

Great Steps Origins (Throwback Thursday)

It’s “Throwback Thursday” and Great Steps 4NF season! So today we honor those who had the Great Steps 4NF vision 13 years ago with the first walk in Naperville, IL. Many of those original teams still join us today and new walks and new teams come on every year. Thanks to the desire, determination and Read the Rest…

Naperville 2013

Neurofibromatosis Inspirational Day!

Check out the photos and the wonderful video of a speech from two inspirational families.


Check out the photos by Christina Michelle

We just finished the popular neurofibromatosis walk, Great Steps 4NF, in Naperville, IL on June 1. This is a hugely attended, inspirational walk/rally for the NF cause in Read the Rest…

Great Steps Naperville Start

Great Steps 4NF 2012 Naperville Video

See what it’s all about. Watch video of the 2012 Great Steps 4NF walk in Naperville, IL. Started in 2001, this is the largest walk for neurofibromatosis in the US and possibly the world. Not too physical, the focus is on fun and support. It’s a rally for NF!

Read the Rest…

Great Steps cutie

Register for Great Steps 4NF


Join the NF community and participate in a Great Steps for Neurofibromatosis walk.
The Great Steps 4NF Walks include the largest walk for NF in the country in Naperville, IL.
Bring co-workers, friends and family.
Fun and friendship is the theme!
Our loved ones with NF are the center!
Raise awareness and funds by starting Read the Rest…