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Neurofibromatosis Midwest


Archive for the “Events” Category

Tim's Gang at our Inaugural Great Steps 4NF walk in Naperville, IL.

Great Steps Origins (Throwback Thursday)

It’s “Throwback Thursday” and Great Steps 4NF season! So today we honor those who had the Great Steps 4NF vision 13 years ago with the first walk in Naperville, IL. Many of those original teams still join us today and new walks and new teams come on every year. Thanks to the desire, determination and Read the Rest…

camp swimming

Camp New Friends 2014

Having one of the neurofibromatoses (NF1, NF2, Schwannomatosis) is a lifelong challenge. Building a foundation of strength and knowledge; and developing a circle of friends that understand and will always be there, can make a lifelong difference.

Camp New Friends, run by Brainy Camps, is an opportunity for children (ages 7 to Read the Rest…

shop 4NF post

Shop and Benefit Neurofibromatosis

This holiday season you can use one gift to give twice! Buy awareness merchandise from our store or gifts from direct sellers who are donating most of their profits back to NF Midwest. That way your loved one gets a nice present and NF Midwest gets the gift of a Read the Rest…

Donald giving it his all for NF!

RUN 4NF – The Inaugural Naperville Marathon

Donald giving it his all for NF!

This Sunday, November 10th is the Inaugural Naperville Marathon in Illinois. NF Midwest is lucky enough to have 18 runners in the marathon dedicated to RUNNING 4NF. Some are running the half marathon, others are running the full 26.2 miles. Some are running at the peak of health, while Read the Rest…

Can you say Neurofibromatosis

Support Neurofibromatosis Thru the United Way

Support neurofibromatosis by giving monthly.

During specific times of the year your workplace may offer you the opportunity to participate in charitable giving through the United Way. Quite often you may also be given the opportunity to select a specific non-profit such as Neurofibromatosis Midwest. Even if NF Midwest is not listed, Read the Rest…

Naperville 2013

Neurofibromatosis Inspirational Day!

Check out the photos and the wonderful video of a speech from two inspirational families.


Check out the photos by Christina Michelle

We just finished the popular neurofibromatosis walk, Great Steps 4NF, in Naperville, IL on June 1. This is a hugely attended, inspirational walk/rally for the NF cause in Read the Rest…

Great Steps Naperville Start

Great Steps 4NF 2012 Naperville Video

See what it’s all about. Watch video of the 2012 Great Steps 4NF walk in Naperville, IL. Started in 2001, this is the largest walk for neurofibromatosis in the US and possibly the world. Not too physical, the focus is on fun and support. It’s a rally for NF!

Read the Rest…

Great Steps cutie

Register for Great Steps 4NF


Join the NF community and participate in a Great Steps for Neurofibromatosis walk.
The Great Steps 4NF Walks include the largest walk for NF in the country in Naperville, IL.
Bring co-workers, friends and family.
Fun and friendship is the theme!
Our loved ones with NF are the center!
Raise awareness and funds by starting Read the Rest…