Awareness Color for Neurofibromatosis
At NF Midwest we are frequently asked what the “awareness color” is for neurofibromatosis for use in ribbons, etc. So we’re going to attempt to set the record straight!
First, understand there is no all-powerful, divine being that bestows awareness colors. Also, as far as we know there has never been any sort of agreement or vote on a color between all the various people and organizations interested in NF awareness.
Instead, there was a gradual trend toward certain colors and sort of an unspoken agreement on what they are. The unofficial, but now very accepted colors for neurofibromatosis awareness are blue and green. Yes, there are TWO colors! Which is probably totally appropriate given that there is more than one form of NF.
It’s a complicated disorder, so of course it has a complicated color!
It is also generally accepted that blue is the main color. So if, blue and green isn’t available together then blue is the go to color. So the ideal awareness ribbon is blue AND green.
We hope this helps!
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How can I get this ribbon in a PDF to put on a banner for a benefit we are having for my son
Hi, Shannon – this was clip art from the internet that we have adapted, so you could just search for it.
Hello my name is Jean Live in California. My 25 year old was diagnosed has gone through 2 surgeries so far. They now think there is a link with mirror image identical twins. The last tumor taken out came back 4 mutations for 4 different types of cancer. 2 being genetic. She has a 3year old. I am so scared and she is so postive. 8vweeks when radiation is done. Her and I and her twin we are all shaving our heads together. Any support groups for her in Santa Rosa California?
Hello, Jean. Here is the link to California: http://www.nfcalifornia.org/ . If the link doesn’t work, try copying and pasting into your browser. Hopefully you will get some support from them. We only service six Midwest states, Good luck,
Paul
Hi my name is Denise Montgomery I am 49 years old and live in Oregon I too have neurofibromatosis 😥 I have no idea how to go about getting educated about this Disease my medical is Kaiser Permanente and they have no NF groups I have googled doctors or clinic in my area the ones that know about NFAre at DornbeckerChildren’s Hospital or Sriners which are both children’s facilities I did have 50 of my tumors removed my primary care doctor referred me to a orthopedic oncologist That is who performed my surgeries I have recently joined the neurofibroma a Facebook page but I just wondered if there’s any information or any knowledge that you have of where I can go to find out more information about the disease Thank you for your time☺️
Hi Denise,
I understand how overwhelming it can be when you try to start chipping away at neurofibromatosis information and education, but we have a lot of terrific educational materials on our website, especially our ‘Be iNFormed’ articles that you can find here: http://www.nfmidwest.org/learn-about-nf/be-informed-database/
To get more help locally, I recommend that you contact Washington State Neurofibromatosis Familes as they service the state of Oregon too. Their website which can be found at: http://www.wsnfsupport.org
Good luck and take care!
Hey, iam 17 years old and have nf1. I am so happy to see that there places people can go and see this kind of things and learn more about it. thank you so much supporting
Where can these pins be bought? I know someone selling them for 16 dollars each this is wrong as I have seen cheaper . I need 10 for my family members who Have NF . Yes only buying for ones who have it right now and dont have much money as my money is being used on my treatments .
I’m not sure where you can buy them. We don’t sell them.
you say blue is the color just wondering what shade. trying to get a tattoo
Just sort of a regular blue. Blue and green is the actual preference.
We recently received the news that my daughter has nf1 with “lesions” on her brain. We will be starting our journey this month our trips to various doctors. I’m so lost about what questions to ask and things i need to look for as our doctors here are not very familiar with nf1. Our specialist is 4 hours away and I’m not sure what w need to ask and what precautions we need to be taking.
Stephanie, I’m sorry that we are just seeing your post. Please contact us using the form at http://www.nfmidwest.org/contact and we’d be happy to give you some direction. We know this can be an overwhelming journey.