Neurofibromatosis Midwest is led by people with personal connections to and a real understanding of the difficulties of the neurofibromatoses and schwannomatosis. Our first consideration is always what is best for the NF cause and community.
We offer many avenues of support and education for NF affected families and individuals. This includes phone support for such things as clinic information or for an understanding ear. We offer a free packet of information to newly diagnosed patients and continuing information through regular updates, newsletters, articles on our website, and timely response to phone and email inquiries. We also provide referrals to NF specialists and, if requested, introductions to other NF individuals and/or families for support. We encourage those who are interested in discussions with other NF individuals and families to join the NF Network Message Board and the NF Midwest Facebook Group.
From time to time we host informal receptions to bring together NF patients, family members and medical professionals who enjoy the opportunity (many for the first time) to learn more about the neurofibromatoses, schwannomatosis and NF Midwest.