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Neurofibromatosis Midwest



Most of the work gets done through the enthusiasm of our committees and volunteers. Our committees require people who have the time and energy to give to the neurofibromatosis cause. If you have what it takes to make a real difference and would like more information on joining a committee please give us a call at 630.945.3562

Our committees include:

  • NF2ACT – Neurofibromatosis Type 2 Action Committee – This committee oversees everything related to NF2. This includes developing material, planning symposiums, and recommendations of NF2 related funding.
  • Great Steps Committees – These are local area committees whose specific function is to set up a walk for NF. There a variety of responsibilities to be shared on these committees and they are great way to work with others in the community for the NF cause.
  • Fundraising Committee 
  • Local Area Committees – see Chapters