Dedicated. Determined. Disciplined.

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982 and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

We are also dependent on funds raised by special events, foundations and individual donations. Support us in the fight against neurofibromatosis by visiting our Get Involved page.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.

Mission

Neurofibromatosis Midwest is an organization dedicated to the support and education of people affected by the Neurofibromatoses, to the education of health care providers, and to the investment in research.

• Board/Staff
• Financials
• Research Grants
• Clinical Care
• Education
• Support
• Advocacy
• Camp
• Regional/National Contacts
• Committees
• Chapters
• Contact Us